In a heartfelt revelation, actor Colin Farrell shared why he and his former partner, Kim Bordenave, have chosen to place their 21-year-old son James—who lives with Angelman syndrome—in a long-term care facility. From the start, Colin Farrell son Angelman syndrome journey has been one marked by dedication, compassion, and deep parental concern.
James was initially misdiagnosed with cerebral palsy after missing key developmental milestones in infancy, such as sitting up or crawling. However, further evaluations revealed he actually had Angelman syndrome, a rare genetic condition affecting the nervous system, which leads to both cognitive and physical challenges.
Reflecting on their decision, Colin explained, “It’s tough. Some parents want to be the sole caregivers. I respect that. But my biggest fear is, what if something happens to Kim and me? Then James could become a ward of the state—with no voice in where he ends up.”
Instead, they are searching for a facility now, while they are healthy and involved, to ensure James can feel supported, safe, and loved. “We want him in a place where he can thrive, and where we can still visit, take him out, and stay a part of his life,” Colin said.
Colin Farrell Son Angelman Syndrome: From Diagnosis to Daily Triumphs
The Colin Farrell son Angelman syndrome journey began when James was about a year and a half old and still hadn’t reached basic milestones. A doctor eventually recognized key indicators—like sudden bursts of laughter and hand-waving—and suggested testing for Angelman syndrome. Upon confirmation, Farrell’s first concerns were about pain and life expectancy. He was relieved to hear the condition does not typically cause pain and doesn’t shorten lifespan.
James is nonverbal and relies on round-the-clock assistance for daily tasks like eating and dressing. Despite these hurdles, he’s made remarkable progress. “He started feeding himself at 19, and although it was messy at first, he does it beautifully now,” Colin said proudly.
He also shared a poignant memory: watching James take his first steps at nearly four years old. “The determination on his face… I just broke down in tears,” Colin recalled. “It was one of the most powerful moments of my life.”
Colin Farrell Son Angelman Syndrome: Though seizures are common in Angelman syndrome, James hasn’t had one in over a decade thanks to carefully managed medication. “I’ve administered emergency meds during long seizures and ridden in ambulances with him. It’s all part of the experience,” said Farrell.
To further support families dealing with similar struggles, Farrell is launching the Colin Farrell Foundation, aimed at education, advocacy, and resources for people with intellectual disabilities.
Colin continues to celebrate James’s milestones—his first words at six, self-feeding at 19, and seizure management—all while ensuring he has the happiest, most secure life possible.
“James has worked so hard for every bit of progress. He’s my hero,” Colin shared. “He’s magic.”
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Source: www.dailypositiveinfo.com
